Grief and Bereavement: When a Child Dies

What are the symptoms of grief?

The emotional and physical symptoms of grief are often the most obvious part of mourning. Everyone expresses sadness and loss in different ways. But there are some common characteristics.

Crying, sorrow, and anger are common emotions when dealing with death. Often anger is misdirected. This can cause conflicts with family members and marital relationships.

You may have appetite changes, eating more or much less. You may need more or less sleep. Survivors may detach from all those around them. They include surviving siblings and spouses. However, attachment to surviving siblings may become overbearing and unhealthy to both parent and sibling.

These strong emotional and physical symptoms of grief may not happen for all people who experience a loss. These symptoms may last as short as a week after the death or may last months or years.

Important

Feelings of loneliness and desolation can be dangerous to some extent. If the living feel there's no point going on without their loved one, feelings of suicide can preoccupy their thoughts. These desperate feelings need to be addressed right away. It may be normal to think about death and feel left behind when someone close dies, but it can overcome all other emotions and lead to suicide. Call 988 if you or a family member have thoughts of death. This is the Suicide and Crisis Lifeline. Call or text for help.

What are the stages of grief?

The grieving process is very personal. People may experience the stages in different orders and for different times. People who are grieving don't always progress in order. Some people may start with anger. Others may start with denial. The stages of grieving aren't necessarily a one-time experience. Often people who are grieving will cycle through the different stages more than once. However, each step helps with the healing process. Grief is often described in these stages:

• Denial. Denial is a stage where you can try to believe that the death hasn't occurred. You may feel numb, or in a state of shock. Denial is a protective emotion when a life event is too overwhelming to deal with all at once.

• Anger. Anger is a stage in which you're very upset and angry that this tragedy has happened in your family. One of the best ways of dealing with bursts of anger is to exercise or participate in another type of physical activity. Talking with family and friends, other parents who have lost a child, and the hospital staff, may also be helpful.

• Bargaining. Questioning God, asking "Why my child?" and "What did we do to deserve this?" are common questions in this stage. Guilt is a primary emotion during this stage. Searching for something that you personally did, which could have contributed to the death, is all part of bargaining. It's important to remember that there's nothing you or your child did which contributed to the death.

• Depression or sadness. This is a stage in which the death of a child can no longer be denied and parents and siblings may feel a profoundly sad. This is normal. It may be accompanied by physical changes. These include trouble sleeping or excessive sleeping, changes in appetite, or trouble concentrating on simple daily activities. It's important to talk about depression with a healthcare professional. Examples are a social worker, or counselor, or meet with a support group to help you cope with these feelings.

• Acceptance. Acceptance is the stage in which you've accepted death. You are at a point where your child's death has been incorporated as part of your life. You've made an adjustment to the loss. This doesn't mean that you'll never feel other emotions. Families often find that they're better able to manage their lives overall on reaching this stage. Some resolution has taken place with the child's death. This may include your religious and cultural beliefs and practices.

Sibling and peer bereavement

The impact of a child's death on their siblings is important to address. Most young children can overcome the trauma of a sibling's death with the necessary support and time. Many children have strong feelings of guilt and blame when their sibling dies. Often the child who has died is idealized after their death. This leaves feelings of inferiority and neglect for the surviving siblings. These siblings have often been surrounded by death, illness, and great sorrow from all family members, especially parents, during the dying child's experience. More often, the young siblings of a child with a terminal illness have been protected from some of the experiences associated with the death. They may not have been allowed to visit the dying child. Or they were prevented from participating in the religious or cultural rituals, and possibly, even prevented from attending the funeral. However, all of these experiences may help with closure and can make a sibling's survivor-guilt less burdensome.

Peers and classmates may experience the grief process in a variety of ways. Many children may not have had an experience with anyone their age dying from an illness or accident. For any age group, review of our own mortality and purpose in life is evaluated. Young children may fear they will die soon also. They may also have feelings of guilt and blame, similar to the sibling's expression of grief. The peer of a dying child also needs time and emotional support to grieve over their loss of a friend, neighbor, or classmate. There are many support groups that include nonfamily members and peers in helping work through the grieving process.

Help is available

Support groups are available to help families cope with a loss and work through their emotions associated with grieving. The phone book, hospitals, churches, and the Internet are all full of sources that are available to help.

It's important to understand that grieving is a normal response. Grieving, however, should be managed so that activities of daily living and relationships among the survivors can be maintained. Misdirected anger and feelings of guilt and blame can be very harmful to a family and marriage. Seeking out support groups and professional help may make the grieving process more manageable and have less long-lasting effects.

No support group will be able to take away the hurt and sorrow. Nor will they be able to magically end the grieving. Support groups will, however, help you understand your emotions, the loss, and meet others who have had similar experiences and what helped them through their toughest moments.

Follow-up care is also an important task for support groups. Often there's a lot of attention focused on the family in the first few months after the death. But there may be little support years down the road. Grief can resurface years later. It may be triggered by a memory of the deceased, another child in the family, or by an anniversary or birthday associated with the deceased. Follow-up care in the bereavement process is important to be able to detect a repeat of grief and to manage long-lasting effects of grief. Follow-up care may take place over months to years.

Complicated grief

Moving through the normal grief process takes times. If grief goes on a long time without making progress, it may be called "complicated grief." It's important to reach out for help if you or a loved one are feeling like you aren't making progress.

If you or a loved one have thoughts of suicide and a means to carry out the plan, get immediate help. Call the Suicide & Crisis Lifeline at 988 The Lifeline provides free and confidential support 24 hours a day, 7 days a week across the U.S. and certain territories. Services can be accessed online and by phone, text, or chat. It also offers services in Spanish and for TTY users.